This website is dedicated to the millions of thyroid patients who are being ignored and left to suffer unnecessarily, and to healthcare practitioners, who want to better serve those patients.

Ooops! Should they have said that

“I told him I was concerned about my weight which I couldn’t lose. He said “Why do you think it’s unusual for a woman in her fifties to be fat?”

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She said she could give me a number to ring to get free gym time on the NHS but my BMI was not quite high enough so she said she would say I was depressed!

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I had one woman telephone me who told me she had told her GP that she was losing her body hair and now had no hair growing in her armpits to which the GP said “.you can’t grow hair there “cos you’re too fat”.

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Many years ago, before diagnosis, when I asked my then Dr about the problem I had with weight gain and the struggle to lose it his reply was “well, no fat person ever came out of Belsen.”

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I started by telling my doctor a major sympton is Chronic Insomnia her response – You Are HyPER NOT HyPO. Saying “You would sleep if HyPO and NOT sleep if HyPER”. Well as far as I can tell from reading Insomnia is a common symptom of HyPO?

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I told my doctor I was always freezing cold and my temperature never got above 34.8 degrees C. He thought for a bit and then told me that this was often the case with patients when he worked at the hospital. Therefore there was nothing wrong with me.

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“It’s an age thing!” That is what I was told by my GP after going from a size 10 to a size 22 in six months at age 25!

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His response was You women! Why do you always blame your thyroid? Look at your age and you’re menopausal, theres your answer and he wouldnt listen to me.
Still feeling ill 5 years after being diagnosed and treated with thyroxin went to doctor for help.

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I once told my doctor I’d done some research and was horrified when I saw some of the results of being
hyperthyroid. His answer? “Sometimes its better not to know.”

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My doctor told me “Trust me I’m a doctor. T3 is converted to T4, therefore there is no point testing for T3. I know my physiology very well

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6 years ago when I first took time off physically exhausted, unable to get my breath (like Bronchitis but no rhinal infection), unable to walk any distance.GP tested bloods for “nasty bugs” including Malaria. Tests all OK and hormone tests within normal range.GP concluded:
“the problem is you’ve put on a lot of weight”,
“you are not eating enough,”
“body has gone into starvation mode”,
“here’s Weetabix diet, eat 3 meals a day, breakfast most important”

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4 years ago when I collapsed with exhaustion I asked if my symptoms might be Thyroid related as I had a friend who had similar problems. I was told that my “blood test was normal and this ruled out Hypothyroidism”.

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When applying for a “Blue Disabled Parking” badge: Refused on grounds my G.P.said it was “a temporary illness” G.P.wrote in notes “admits she can walk 50m but claims she would be exhausted if she did so” and said to me “there are people much more ill and more deserving than you”

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My GP recently refused to give me a trial of Thyroid Hormone replacement on the basis that
“it might do you harm, dangerous to speed up metabolism, heart failure etc.”
“considered to be ‘fringe’ medicine, outside normal conventions”..
“could try to find you an ‘alternative’ Endocrinologist closer to home than Turkey”
“you’ll have to go Private to find this sort of treatment which is ‘frowned upon’ by the NHS”
“you simply have to eat a third less calories as you get older”
“could have predicted that weight gain, post-menopause, would be a problem in your case”.
“the trouble is, now people think they will lose weight on Thyroxine everyone is going to want it!”
Cheers Doc. Very helpful!

I feel like death warmed up! I’m in constant pain, depressed and suffering with more than 50 physical symptoms. I’ve only been menopausal for 18 months, but I’ve been following a healthy regime for the last 6 years and I’m still putting on weight!Do you really think I’m only asking for Thyroxine because being overweight is the most important thing on my mind?

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‘Dial M for Murder’ One lady GP I saw told me I was probably constantly exhausted as a result of too much investigating what could be wrong with me!!! I felt like throttling her.

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My GP looked at me and said “I believe you are an immune type of person” As I had been finally diagnosed with an underactive thyroid together with having alopecia universalis I had to agree with him!

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How to Take Medicine: “Many years ago I was taken into hospital as an emergency although I cannot remember what for. During my stay, regularly after our meals the nurse came round with the drugs trolley to give us the medication the doctor has prescribed for our respective conditions. Finally I was discharged but first I had to go to the pharmacy to pick up the prescription the doctor had written for me to carry on taking. I say finally because I was in there longer than most because I was not healing that quickly (which was probably put down to diabetes).

I took the prescription to the hospital pharmacy and pharmacist reminded me I must take it on an empty stomach when he was putting the pills in the bottle and again when he handed me the bottle he emphasised MUST take it on an EMPTY stomach. I asked what would happen if I didn’t and he replied that it would be completely ineffective.
So I stormed down to the ward and asked the sister why I had been given the medication AFTER my meals when it distinctly said to be taken on an EMPTY stomach. Her reply “I am not going to disrupt my ward’s routine just for one patient”.

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When trying to get help for what I now know was Hashis some forty years ago, I was told that I was exhausted and cold (body temp 35 degrees), putting on lots of weight while dieting, and losing my hair …. because I was getting old. I was 23 – which was around ten years younger than the dimwitted and terminally callous doctor.

Jennyanycat,