This website is dedicated to the millions of thyroid patients who are being ignored and left to suffer unnecessarily, and to healthcare practitioners, who want to better serve those patients.

THYROID PETITION LODGED WITH SCOTTISH PARLIAMENT

Since TPA’s inception in 2007, we have written to numerous individuals and organisations in our endeavour to ensure that the present diagnostics and treatment protocols will be investigated and, where necessary, changed, so that all sufferers of thyroid, and thyroid related conditions will be given a correct diagnosis and treated with medication appropriate to their specific needs.

We have written to individuals and thyroid/endocrine organisations in England, Ireland, Scotland and Wales and throughout the rest of the world. We have sent official complaints to the Human Rights Commission; Liberty; the Department of Fair Trading; the Charities Commission; the Secretary of State for Health (Scotland and England); the Secretary General and many others. Almost all of the letters and complaints sent by TPA and other thyroid advocacy groups have so far been ignored, or rejected’, but TPA will not give up – we are fighting for you.

I was thrilled and proud to have been invited to meet Elaine Smith, at the magnificent Scottish Parliament building by Scottish residents Sandra Whyte and Marian Dyer in March 2012. At the end of that meeting, it was agreed that a Petition should be submitted to Petitions Committee who would decide, in a case of dispute, whether it is admissible and if so, what action should be taken.

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L to R: Amanda, Sheila, Howard and Sandra – March 2012

I am delighted to inform you that a Petition entitled ‘Effective Thyroid and Adrenal Testing, Diagnosis and Treatment’ was lodged with the Scottish Parliament by Sandra, Marian and Lorraine Cleaver on 19 December 2012 and that an initial discussion took place on Tuesday 5 February 2013 at the Scottish Parliament.

Summary:

5 February 2013: The Committee took evidence from Sandra Whyte and Lorraine Cleaver. The Committee agreed to write to the Scottish Government, the General Medical Council, the Royal College of Physicians, Thyroid UK, the World Health Organization, the Scottish Intercollegiate Guidelines Network, Dr Stefan Sberg at Karolinska Institutet, Sweden and Dr Henry Lindner, Pennsylvania, USA. Link to Official Report 5 February 2013 (374KB pdf)

16 April 2013: The Committee agreed to write to the Scottish Government. Link to Official Report 16 April 2013 (473KB pdf)

28 May 2013: The Committee agreed to invite the Cabinet Secretary for Health and Wellbeing to give evidence at a future meeting and write to the Medicines and Healthcare products Regulatory Agency and Amdipharm Mercury. Link to Official Report 28 May 2013 (471KB pdf)

25 June 2013: The Committee took evidence from Alex Neil, Cabinet Secretary for Health and Wellbeing, Lesley Metcalf, Policy Manager, Clinical Priorities Team, and Alpana Mair, Deputy Chief Pharmaceutical Officer, Scottish Government. The Committee agreed to hold a round-table discussion at a future meeting. Link to Official Report 25 June 2013 (499KB pdf)

All Written Submissions can be read HERE:

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